Busy life is supporting CORY'S STORY IN AUGUST! Please, shop now to support!
I am delighted to announce that in August 2019, Busy Life is supporting Cory's Story. Cory was born with multiple complexed medical and learning needs; including an extremely rare genetic condition called DYRK1a (only 200 people diagnosed in the world). This causes him to have learning disabilities, visual impairment, inability to verbalise and difficulties mobilising.
As well as his genetic condition, Cory has many complexed medical needs including epilepsy and severe immune deficiency that makes him extremely susceptible to infection which he has to have special infusions for every three weeks in hospital. As well as the above, Cory has heartbreakingly been diagnosed with a life limiting neurological condition that causes his bowel to intermittently fail. Therefore, Cory is fed by two pumps via a tube into his intestine and he has a drain bag attached to help with his stomach contents. He also has an access line directly into his chest so he can have the majority of his medications.
On a daily basis this condition causes this amazing little boy a lot of pain that he needs very strong pain relief for. But even with all of this going on cory is a fighter... his strength is unbelievable. He always has a smile for everyone...we are so very very proud of this amazing brave little boy.
A donation to Cory's story with every purchase from Busy Life I August! Cory is three years old in August!
This month, Busy Life is partnering with the charity Activate based in Rawmarsh, Rotherham.The charity’s focus is the provision of recreational and leisure activities together with support for developing the skills, capacities, and capabilities of young people. To do so, they run a number of groups throughout the day and evenings, both in term-time and during the school holidays.
Activate offers a range of activities including crafts, music, and play and provides opportunities to participate as volunteers. It’s an exciting time for Activate! The charity is developing its’ services with a focus on children with additional needs. Activate will be providing after school childcare from September.
A donation to Activate with every purchase from Busy Life in July!
I would like to introduce Busy Life supporters to the charity Niemann-Pick UK (NPUK).
There is no “easy way” of describing this ultra rare disease. NP is a life-limiting and neurodegenerative disease that is caused by a build up of fats in the liver, brain, and spleen. Symptoms may include lack of muscle control and loss of muscle tone, brain degeneration, increased sensitivity to touch, and slurred speech.
AT PRESENT, THERE IS NO CURE FOR NIEMANN-PICK
Thankfully, thanks to NPUK there is practical and emotional support and information, and also help to facilitate research into potential therapies. NPUK’s strength comes from the dedication of their much-valued families, members, benefactors, and all others who work with tremendous effort and loyalty in support of the charity.
NPUK is the Busy Life Ltd Charity of the month for June 2019. With every sale made a donation will be made to this charity. Please, shop today at Busy-Life.co.uk.
For more information on NP, and the vital work of NPUK, please visit www.npuk.org.
Busy Life supporters. This is who we are.